Schnee Way

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Bringing the latest NF news to you
PAUSE FOR A CAUSE
Schnee Way wishes to recognize people attempting to raise money for NF awareness and research.
~ Charity ~
About my charity:

Children's Tumor Foundation
The NF Marathon Team Program is an exciting way of supporting NF research and Children's Tumor Foundation programs. Individuals sign up to participate in an established marathon as part of the NF Marathon Team. Participants receive training in fundraising and have goals to raise financial support for the NF cause. Each walker/runner can qualify for free transportation, lodging and more for the marathon weekend by raising a certain amount in donations. In addition to raising much-needed funds for NF research and Children's Tumor Foundation programs, becoming a member or donor on the NF Marathon Team helps spread NF awareness. The NF Marathon Team Program also needs volunteers in the marathon cities to help with NF Team transport and to provide support during the marathon.


~ Participant ~
 ~ Background ~

Seth Gregorash



"Running for Seth"

Hello,

My youngest son Seth has neurofibromatosis (NF1). NF affects 1 in every 4000 births. It is a genetic disorder that causes tumors to grow on nerves anywhere within his body. It also causes bony deformities. Seth has a large bump on his chest and wears a brace on his leg. Our biggest concerns with Seth are the lesions in his brain and the large tumor in his chest. His tumors are monitored very carefully with MRIs every three months. We travel to Winnipeg often to see Seth's numerous doctors. The last visits were to discuss options with the oncologist, cardiologist and neurosurgeon. It can be very scary to think about Seth's future, but I feel most helpless when I have to hold Seth down while the nurse hooks up an IV before his MRI or when I can't fix an ache or pain.

That is why I have chosen to run with the NF marathon team. Instead of worrying about things I can't do, I'm choosing to concentrate on the things that I can.  Our foster daughter Dorinda, will also be running with me!

Thank you for your time; raising awareness for NF is part of the battle, raising funds for research and a cure is the other.

God bless,
Seth's Mommy, Tracy

P.S. I am so totally amazed at all the people who have helped us with our aim to raise funds for Seth's disorder!!! Thank you so very much for your help and prayers being sent!
Your generousity is truly overwhelming!

Please make sure you realize that money donated online will be accepted in US funds and that the Children's Tumor Foundation is not currently registered as a charitable donations organization in Canada.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts.

If you prefer to write a cheque please make it payable to...

Children's Tumor Foundation
95 Pine Street, 16th Floor, NY NY 10005
(please include my name and event # on cheque)
Tracy Gregorash #DW-2582-06