Schnee Way: NF - Pause for a Cause

Bringing the latest NF news to you

PAUSE FOR A CAUSE

Schnee Way wishes to recognize people attempting to raise money for NF awareness and research.

~ Charity ~

About my charity:

Children's Tumor Foundation
The NF Marathon Team Program is an exciting way of supporting NF research and Children's Tumor Foundation programs. Individuals sign up to participate in an established marathon as part of the NF Marathon Team. Participants receive training in fundraising and have goals to raise financial support for the NF cause. Each walker/runner can qualify for free transportation, lodging and more for the marathon weekend by raising a certain amount in donations. In addition to raising much-needed funds for NF research and Children's Tumor Foundation programs, becoming a member or donor on the NF Marathon Team helps spread NF awareness. The NF Marathon Team Program also needs volunteers in the marathon cities to help with NF Team transport and to provide support during the marathon.

~ Participant ~

~ Background ~

Meadow & Lisa Quinn

"A Plea From A Parent"

My name is Lisa Quinn. My daughter Meadow is 4 years old and suffers from Neurofibromatosis (NF), a disorder that causes tumors to grow on nerves throughout the body. These tumors can cause blindness, deafness, and disfigurement, loss of limbs, learning disabilities, scoliosis, and congenital defects of bones, cardiovascular defects and cancer. NF1 is the more common disorder affecting 1/3500 people throughout the world. There is NO cure for NF.

For Meadow and other children with NF every day is a challenge. Every pain causes concern. We wonder did another tumor grow? Are the tumors that are there causing pressure on another nerve? We hope and pray for the best and we hope and pray for a cure. Meadow and our family need your help.

Meadow was diagnosed with NF when she was 15 months old. She has a feeding tube, develpomental delays, a deformed kidney, tumors throughout her GI tract, tumors on 3 different parts of her brain and most recently she has a tumor that has started to grow in her left leg. Meadow receives speech, physical and occupational therapy.

This Labor Day I am participating in a marathon to raise funds for the Children's Tumor Foundation. The Children's Tumor Foundation provides patient services, public education, and medical research aimed at finding effective treatments and a cure for NF. Will you please help us by making a donation and sponsoring me in the Children's Tumor Foundation Marathon? Please help us find a cure for this terrible disorder. Your kindness and support means so much.

Meadow and I thank you from the bottom of our hearts. God bless you.

With love,

Lisa Quinn

If you'd rather send a donation in the mail:
Make your check payable to Children's Tumor Foundation and note that it is to sponsor Lisa Quinn - Marathon # VB-1216-05

Mail to:

The Children's Tumor Foundation
95 Pine Street 16th Floor
New York, NY 10005